Community

It is a true gift to have people who get you. Its been nearly a week since we scheduled Amaya's surgery and I've already started to hear from our PFFD friends. These are parents who also have a child with PFFD. They've offered kindness, empathy and advice. I have a phone called scheduled with a PFFD mom this weekend to chat about Amaya's upcoming surgery. Her son, who's pretty close in age to Amaya, underwent lengthening with the Precise nail last year. She's already helped me so much! I can't wait for the phone call where I can ask all the things that I've been curious about! I've anxiously been searching the internet like crazy hoping to find any information. It'll be great talking with someone who's experienced it first hand.She shared some of the things we can expect for Amaya...

• that'll shell spend a few days in the hospital recovering

• that she'll use crutches (for quite awhile)

• that she won't be able to bear weight fully for awhile

• It'll be tough, but much easier than the external fixator (yay!)

We also heard from other families across the country offering support via zoom visits, and well wishes. Hopefully we'll be seeing another PFFD family from Oregon on their drive through Northern California late next week.

In addition to our PFFD family we are so lucky to be surrounded by amazing family and friends. Our community is amazing! These are the people who when they tell us, "we got you" I know that they do. Already the offers have come in to help care for Lidie, to feed Cocoa (our cat), make us dinners, let us vent, pick us up from the airport, research and help book our flights, and so much more.  

I'm blown away by all the love and support and I am so grateful for each of you. Thank you

When we got home today we had a package waiting for us. Our sweet friends the Wasserman's sent this for "Amaya the Amazing! The Crutch Buddies give padding to make using crutches a bit more bearable. These are the ones they used for their son and recommended them for Amaya. What a lovely surprise!