We had a great weekend. It was the busiest one we've had since the surgery. Amaya had several things she wanted to do, so we decided to do them all (keeping busy is a good distraction from the pain). On Saturday we went to Cici's pizza (she's been craving their mac n cheese pizza for weeks) then went to the mall so that she could cash in her gift certificate to Build-A-Bear that her friends gave her at her love party. She's been wanting to go there for quite awhile to make a friend. When we were walking in the mall I overheard a teenager tell his friends, "Hey look, there's someone who's paralyzed." I looked over because I couldn't believe he would say something like that so loudly, but then I realized that he was pointing at Amaya. She had heard him too and asked what he said. I told her that he thought that she was paralyzed. Then she said, "Not everyone in a wheelchair is paralyzed, doesn't he know that?" "Apparently not." I said. It's nice to know that my six year old has more sense, than that teenage boy did. It's sad how much ignorance is out there in the world. Hopefully Amaya and Lidie can teach others throughout their lifetimes. By the time we got home the girls were exhausted. Lidie fell asleep quickly, but no matter how tired Amaya was she just couldnt' sleep well. It was so sad to see her moan and cry in her sleep. Josh woke up with her at one then three then again at five thirty. He got up with her the last time and let me sleep in until seven thirty. It wasn't that late, but it felt so long (when you aren't getting good sleep, even an hour or two seems like a lot).
On Sunday we rested in the morning then went to my aunt's house to celebrate her birthday. Josh stayed home because he was so tired from being up the past two nights with Amaya and he wanted to rest before heading back to work. It's getting to be the end of the school year for him and he has a lot of IEP's to take care of as well as state testing. Before we left we did Amaya's physical therapy. We did a massage, stretches, she walked (this is the first time she did a two finger touch walk with me, then she walked all by herself! Her steps were smooth and strong, and not wobbly.), rode the scooter, then rode the bike. I was so impressed with how well she did. I was so happy and excited by her improvements in just two weeks since she's been fully weight bearing. The last thing we did was knee bends. Ugh! These were tough! Amaya pushed her leg back for the first two bends then had me do the rest. Pushing her leg back, and causing her pain was so difficult. I could barely get thru the counts without crying. It just about broke my heart to hear her in pain, and to know that I couldn't stop it. We held each bend to a count of thirty. Me and the girls went and had a good time. Amaya walked into my aunt's house with her walker and made my aunt cry. She said, "That's the best gift I've gotten, to see you walk." It's always nice to see people's genuine surprise, and pride when they see Amaya do things they didnt' think possible, like walking on two level feet! The girls had a great time hanging out with family that they hadn't seen in a few months. Tia Amanda said she overheard Amaya explaining to a family friend why she had her fixator and how it worked. Amanda was impressed with how well Amaya understood and explained everything. Amaya also showed her aunts her fixator and how much its moved since we started lengthening. There's a picture below; its pretty neat to see.
The girls fell asleep on the ride home, but when we got home Amaya woke up in pain. We had to wash her pin sites and change her gauze (sometimes I wish we could just skip it, but I know better so we don't). I would hate for her to get an infection. Amaya ended up staying awake until nine thirty then had a rough night (which meant Josh and I had a rough night as well). She cried several times throughout the night, and couldn't get settled. Eventually she slept, but woke up at six thirty this morning.
Amaya wanted to see if she fit on dad's shoulders with her fixator, she did!
Me and Lidie cuddling while Amaya made her friend at Build-A-Bear.
This is who Amaya picked. She named her Rosie.
Here's another shot showing her standing so well on her own. Her balance is really improving.
Amaya walking around the house during our physical therapy session. She did so well.
I was so excited, happy and proud of her!
Amaya riding Lidie's bike during physical therapy.
This is the most she's ridden at home since she started weight bearing. This bike is higher than the one at physical therapy, so her leg has to bend a bit more (and work harder).
Amaya playing with Lidie and Tia Amanda.
The girls had so much fun laughing, and being silly. All they needed was a sheet and open space and they were entertained for quite awhile, thanks to Tia Amanda.
Here's the bar on Amaya's fixator. We put a ruler next to it to see how much the bar had moved. You can see on the bar a small black dot (near the 5cm and 2in. mark). Dr.Nelson put that there as a visual to show how much the rod has moved. It's pretty impressive! So according to our ruler the bar has moved 5cm, 2in. which means that Amaya has gained that much new bone! We'll know for sure when she gets her new x-rays today.
Wow!
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