March 24, 2022

One month later

 It’s hard to believe it’s been a month since we stopped lengthening. We went and got x-rays today to see how Amay’s new bone is forming. I’ve emailed images to Dr. Nelson for him to review. I’m so excited and anxious to hear back from him. 

Time has been going quickly and slowly all at once. This Friday will be two months since she had her surgery and we are a month post lengthening. The X-ray tech recognized us when we came in since Amaya is a “unique case.” He also couldn’t believe it had been a month since we last saw him. He asked how much longer we have to keep returning and I let him know we’ll get monthly X-rays for the next two months  

Okay so here’s the X-rays …




If you zoom in the cotton candy fiber looking white stuff is the new bone. So cool!

Dr. Nelson wrote back to say, “These look great!  She should continue to use crutches for walking but she can put full weight on it for standing. Plan should be to repeat x-rays in a month. I agree with the PT plan.”  That’s great news! Amaya was so excited to hear she can stand with full weight bearing. She says she feels more steady and stable while doing things (brushing teeth, changing, going up stairs, etc.). 

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