Sweet & sassy Lidie

I'm a bit tired tonight and still have dishes to do so I think I'll try doing bullets instead of long paragraphs.

Early this morning Amaya thought she saw blood on her incision on her hip. I told her that no, they were just scratches from her nails. She turned to Lidie and asked "Lidie, does it look gross?" Lidie looked then said, "nope." Amaya is still adjusting to looking at that scar, she thinks it looks weird.

Lidie said she wanted to go to a park soon. We agreed that would be fun. Then she added, "a wheelchair park where you can play Amaya." What a sweet & thoughtful sister. I wish such a thing existed!

Physical therapy; today Amaya got to 107 degrees! That's her highest number yet! She said it hurt, but did it anyway. She also was able to hold her leg up four times for a count to ten each time. That's a huge improvement in muscle strength since last week!

In the parking lot Lidie threw a major fit, way worse than last week. It's kinda funny, she was mad because a lady was using the potty she wanted to use. But, it stopped being funny when she started screaming, yelling and throwing shoes. And the stares didn't help much either. 

We went to Grandma Lilli's house; watched Monsters Inc. (still one of Amaya's favorites, but I'm not sure why we don't own that yet), baked cupcakes, fed birds, and drank sparkling apple cider. While we were there Amaya told me "mom, you're the best mom I could ever have." Totally made my day. 

As we were leaving Lidie threw another fit, not as bad, but just as draining. 

At home we ate dinner (thankfully Grandma Lilli had prepared a delicious meal for us. All we had to do was heat it up). 

Amaya got herself off the couch into her walker and into the bathroom all by herslef. She even had to walk sideways in the walker the last few steps to fit into our bathroom. It was pretty impressive. 

Josh and Amaya opened a package from our dear friend Coleen in Chicago. She made the girls blankets! Thank you so much Coleen for the sweet gifts, and card.

As I gave Lidie a bath Amaya wanted to try walking to her in her walker. But on her way she fell. Not fully onto the ground, but more like a baby deer, with her legs spread apart. So sad! It scared her (and us) and hurt her legs a bit. We decided to just take her down to bed after that and skipped her bath.

While I changed Amaya's gauze Lidie watched. She said "awe, let me kiss your booboo's." Amaya told her "don't look at them Lidie they're gross."But Lidie didn't' care. She's not fazed by any of this. 

Today was our last day of antibiotics. Hooray! One less medication!

Another highlight of the day; we got a message on our blog (yesterday's post) from a fifteen year old (not sure if it's a boy or girl) giving encouragement, advice, ideas of things to try, and empathy. Thank you so much! What a sweet, kind message. We appreciate you reaching out. Amaya loves that you "actually know what she's feeling."

Bed time is getting tough. Amaya can't just lay down and go to sleep. We have to lock the bar in place, which basically is locking her leg in a straigh, stretching position. The stretch isn't comfortable and hurts her. Each night it's getting harder and harder for her to adjust to it, to calm down, to deal with the pain and then fall asleep. Tonight it was over an hour.

Amaya holding her leg up for a count of ten.

That's the walker that Amaya has been using at physical therapy (the one at home looks just like it). Today she used that carpet balance thing to work on balance and strenght. The blue table is where she does her stretches.

Amaya posing with her sparkling cider. Lidie was too busy drinking to pose.

We've been taping up the cards we get from people. Coleen, yours will be going up next. We all love looking at them for extra encouragement. Thank you all!

Amaya cuddling her blanket from Colleen. "It's so soft! I love the green!"Lidie loved that they both got one!